The 3rd CNE International Cystinosis Conference
was held from July 7th till July 10th in Leuven, Belgium.
We will show the outcomes of the meeting on this site. We will show both recordings and presentations. The recordings are with translation in to Dutch, French, German, Italian, Russian, Spanish and Turkish. The conference language was English and therefore presentations are in English. This information will be available for 1 year from July 15th, 2022 onwards. See links below.
What can you expect? What did you miss?
Thursday July 7
Paramedical Meeting: View the presentations and discussion notes
Research Meeting: This hybrid meeting was not recorded and presentations are not made available as these may contain unpublished data.
Friday July 8
Main Conference: videos and PDF’s of all presentations.
Poster pitches and poster session: We will show pitches and posters when they do not contain unpublished data.
Speakers dinner: All speakers on the conference were invited for a dinner in Heverlee.
Cooking workshop: the adult patients had a very nice cooking workshop at Dishcover in Leuven.
Walking tour Leuven: we had a guided walking tour through Leuven. Highlights were the central library of the KU Leuven built with funds from American Universities after world war 1 and the beautiful ‘begijnhof’ a city in the city.
Sunday July 10
Child care: was operational like on Saturday.
Quality of Life: See presentation by Lore Willem
Workshops: we had 3 workshops, one for adult patients, one for parents of children from 6-18 and one for parents of adults. Despite some language barriers everyone joining was able to do his or her story and several important subjects were discussed. The workshops were highly appreciated.
Graffiti tour Leuven: the children in age group 12-18 had the graffiti tour as alternative to the workshops. The tour was also joined by siblings and some parents.